New information. The family members who are officially a match for Emily are:
Matt
Sadie
Tyson
Julie
I talked to our case manager today and confirmed the matches!
Although we don't bet on needed them, it does feel better to know exactly who is a match.
Yesterday my sister Kristin and her family came on their way to the lake and it was good to see them for a little while. Bella and Cora were so fun and we could tell they were excited to go to the lake.
Bella asked Emily's grandma if she was her great grandmother. Grandma Wheeler sweetly said, "Well I guess I am." Then Bella replied, " I thought all my great grandmothers were dead?" Hahaha
We all got a good laugh out of that one.
Emily's schedule for the next few weeks goes something like this. Tomorrow she goes in for a bone marrow biopsy, MRI, and CT scan. Then we are good until Tuesday. Starting Tuesday she will get the lumbar puncture, rotuxin and vincristine chemo all on Tuesday and then Wednesday she will have another lumbar puncture. We will be in the hospital for about 7 days and then will have out patient appointments after that for a while. Then hopefully we get another break before we start the 4th cycle.
Emily is optimistic about it all but we agreed that she didn't have to enjoy it or like that she has to do it. We read a great quote that said, "don't think of what chemo does to you. Think of what it does for you." I bet we could apply that to our situation here as well. Don't think of what all of this is doing to us but think of what it is doing for us as a family. Our whole family on both sides. Even our friends should think this way.
I think I mentioned earlier that Emily and I found out that she is allergic to the whole penicillin family. We talked about that after she was feeling better and it just makes sense that there wasn't a better time for us to find out that she was allergic to penicillin. She was already in the hospital for another rotuxin challenge that went great. She got a fever that didn't come from anything. But that small moment of pain and itchiness will no doubt bless her in the future. And make her treatments go that much smoother.
Jack is doing great. We have almost coaxed a genuine smile out of him from daddy's raspberries on his bare stomach. Where did that tradition start anyway? He is sadly growing out of clothes faster than we want because in the time it takes us to dig through the piles of stuff we have to find something that will fit he has already grown out of them! Good think we have lots of clothes in the next few sizes up. In some brands he is already wearing 3-6 month clothing.
Emily put on a hat show for myom tonight she can really pull anything off because she is just so naturally beautiful. All the nurses tell us how envious they are because she looks so stunning without any make-up.
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