Today they told us that as of now, a bone Marrow transplant is off the table! Woo hoo! She still has to do her treatments as scheduled but she can do it! Only 2 more lumbar punctures left! Dr. Hoda said that he threw an idea out there about cranial radiation to make 100% sure that the CNS disease was gone to the tumor boards. No one seemed too excited about the idea but his case is that since she has had CNS disease (normally associated with ALL) it would hurt.
It would be once a day for 10 days at a low dose or radiation from the neck up. He said that they are going to let it fester at the tumor board for a few weeks and then see what they say. Emily votes no. I would rather take the majority of oncologists suggestions on this one.
Jack is doing great and is some what enjoying tummy time. He's pretty aware of his surroundings and definitely notices changes and sounds and colors. So keeping him distracted seems to get easier each day. My mom is doing awesome taking care of him and we are so thankful for her help. Emily's mom comes this next Monday to take her shift and I know Emily is anxious to see her.
They told is that because Emily is doing so well, she may be able to leave on Sunday as opposed to next Tuesday. We are crossing our fingers for that one. Also I wanted to send a shout out to all our awesome nurses. We will have a post on them in the future.
Tonight our friends Ben and Devyn Ricks came and hung out with us. It was nice to have them here just relaxing and talking about nothing incredibly important. It helped me take my mind off of being in the hospital. They are going to come tomorrow too for a little bit.
The A/C is busted in our room and I guess in quite a few other rooms. It's currently 81 degrees. They are working on it and we have our room propped wide open lol.
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